Sikkelcelfonds
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Run for people with sickle cell disease!
Your mileage helps make research and better treatment possible. Sickle cell disease is a serious hereditary blood disorder that is still far too unknown. People living with it face almost daily pain, unexpected hospitalizations, and limitations that impact their entire lives.
By participating in the Bijlmer Run and starting a fundraiser for the Sikkelcelfonds, you directly contribute to increased visibility and more research into better treatment. You help ensure that people with sickle cell disease can move forward.
Here's how you can get started:
Buy your ticket - Register here for the Bijlmer Run. When registering, choose to support the Sikkelcelfonds with an additional donation.
Start your fundraiser - After purchasing your ticket, a fundraiser page will automatically be created for you. Or click here to create your own. And ask all your friends, family, and colleagues to sponsor you!
Rock the merch. We're celebrating 5 years of the Bijlmer Run with an exclusive collaboration: Patta x Sikkelcelfonds. Limited merch with a mission, and all proceeds go to the Sikkelcelfonds.
Charita Zandgrond (organisation of the Bijlmer run):
For me, choosing the Sikkelcelfonds is no coincidence. Sickle cell disease is common in my circle, and I've seen firsthand what this disease means.
As a young girl, I saw my cousin admitted to the
AMC a few times a year for a severe crisis. That was about 35 years ago. Back then, doctors had little choice other than to administer morphine to relieve the pain. Little was known about the disease, research was in its infancy, and the right medication was lacking.
Now, decades later, thankfully more knowledge has been gained, but there is still too little awareness and too little funding for research. Three people in my immediate circle have now undergone a stem cell transplant. An intensive treatment that offers hope, but also carries significant risks and is not an option for everyone.
In total, I know about eight people with sickle cell disease. Eight people for whom health is not a given, and this has a major impact on those close to them. And yet, I notice that within my network, there's still little awareness about this disease. There's too little awareness, too little attention.
With the Bijlmer Run, I want to change that. The disease directly affects our community, and that's precisely why this is the time to get moving together. By running, we not only increase the visibility of sickle cell disease, but we also run together for equal opportunities in health and care.
Will you help?
